It was a win for Paul last night at the Stratford Town Hall at the 3rd of his white collar boxing events, this event was hosted in support of Headcase and we had 3 really good auction items which raised £660. Thank you to Peter Burnett and Ross Hayward of EdBroking and Alex Gray of Millers for their kind bids.
Do you remember you supported Headcase Charity a couple of years ago? You read the blog, you reposted the Facebook updates, you Liked the stories of injuries, training, diets, operations, results and best of all you donated as the months passed leading up to the pitching of aging bodies against the challenge of Ironman race.
Can we call on you time and support, – and hopefully spare cash once again. We raised nearly £50k over 18 months, comprising a variety of events, auctions, culminating with the Ironman race in Nice. This enabled us to support a full time PhD researcher for a year to find a cure for GBM brain tumors. Still 100% fatal with average life sentence of 14 months, yet only gets 0.01% of total U.K. Charity fundraising to try and find a cure.
It’s on again, 13th May 2017. Join the journey and support the efforts to raise funds again to continue the quest to find a cure. No money is taken in Administration fees, and it’s a real direct effect you will be having.
Your involvement in likeing, reposting, tweeting, commenting as well as donating will help the pain seem worthwhile.
Read the story thus far on this blog.
Team Russell: Tony, Peter, David & Dan
How many days until… 161 days
How many weeks until… 23 weeks
How many months until… 5 months
How many hours until… 3864 hours
How many minutes until… 231840 minutes
How many seconds until… 13910400 seconds
Since 2012 the funds raised by all those who knew Colin or the extended family of friends who watched his diagnosis with GBM Brain cancer until his battle was finally lost in the summer of 2013 have supported raising over £45k (10%) of the funds quoted below.
Headcase Cancer Trust now raised in the region of £450,000 since we started in Oct 2010. They have just committed a further £67,000 to Portsmouth University taking their total investment there to £250,000! They have also just committed £95,000 to Nottingham Trent University
More wizards doing wizardly things…..
OK the big news is that they are also funding a 3rd Research Project at Portsmouth University! That means the total investment at Portsmouth will be a few quid short of £1/4 million!! (BIG BIG thanks to all of YOU that have made this happen!)
This time we’re providing funding of approx £68,000 for a 2 year project entitled ‘Engineering Novel Endocrine Therapies for GBM’ (quite).
In Normal Person English (as opposed to Wizard speak) that translates to stretching nano-fibres to a width of around 1/1000th of a mm so they can pass through the Blood Brain Barrier (try saying that quickly!). This is really important as the BBB stops stuff getting to your brain, like drugs (weirdly it lets LSD through though… go figure).
What the Wizards will then be doing is attaching drugs to the nano-fibres so that they are pulled through the BBB quicker (important for some drugs as their potency runs out in minutes), and in greater quantity (important for other drugs as normal amounts, to have an effect, are poisonous to the rest of the body).
If successful, this will then allow said drugs to target the GBM specifically and inhibit its growth and stop it invading healthy brain tissue.
….. and before anyone says it attaching the drugs to LSD so it takes them through the BBB isn’t a sensible option!
Wizards doing wizardly things……..
A chance internet search and phone call has led to Headcase providing funding of around £100,000 to the John van Geest Cancer Research Centre at Nottingham Trent University for a 3 year Research Project!
This is a potentially ground breaking project that if successful could lead to clinical trials within 5 years.
So what are they up to?……
Well it really is wizardly stuff…. they have already discovered an antigen protein present in GBM called HAGE (it’s also present in aggressive breast cancer). HAGE it would seem is a target for a potential vaccine against GBM i.e. the vaccine would stimulate the immune system to ‘kill’ the GBM.
There’s a lot of interest in ‘Immunotherapies’ and personalised medicines for cancer at the moment particularly as they are less toxic than existing therapies. We’ll keep you updated on their progress.
We’re awaiting results from test taking place at the University of Bergen, which if successful, will mean that we can start a 2 year trial of around 100 patients using Clomipramine. Current ad hoc evidence shows that Clomipramine extends survival time for GBM to years rather than months with a good quality of life. If the Norwegian tests are successful we hope to start the trial in June/July.
We are still here and still working hard, and we hope the loyalty in following has not been lost. the new season is unfolding, operations, training changes and a new reset of race ambitions are in place, and the challenge to defy the obstacles of life and body.
So dear followers we would like to know you are out there and that the story is still to tell and the fight against GBM Brain Cancer is still going strong.
Did you think they’d go quietly?
So the last race of the season looms large. And what a difference 5 months makes. It was barely a month after completing the Mallorca that Tony suffered searing pain in his hip and soon after that the news it was arthritis. Not good if you use your hips regularly under pressure! The hope for GB qualification at Liverpool followed a no show at London to help conserve limbs. But it was not going to happen so focus was on Bala in September. If the trip to North Wales wasn’t a challenge enough the event was an immense challenge but even loaded up with painkillers the run was particularly nasty. Either way an impressive finish time and a 8th place, tantalisingly close but not good enough for a GB bib.
A gel sort of thing injection later and training was resumed… but still the pain. So with Dan always threatening Asthma attacks and also nursing a dodgy knee…. The inaugural Dubai Triathlon takes place on the 7th November and the boys are tooling up, health wavering but determined to put in good times.. or at least complete it.
It’s been a year of great highs with the whole Team Russell finishing their half Iron Man in Mallorca with Peter and David crossing the line together and the lows of injury and what could have been’s. But what they all want is to reach the end of this year with the magic £50k for Headcase.
So many have done their bit, Andy and his row, Kirstin abseiling down the Lloyd’s building and the Russells have expended huge levels of resilience and energy.
So if you can just dig into the piggy banks, down the back of the Sofa’s, bottom of handbags and sports lockers – just please help the journey end on a high for all those involved and for the research into this killer disease.
Whatever happens leading up to a race it centres around the training the nutrition and the injury prevention. Life still goes on and the chores and duties still impinge on training sessions. The lift of the spirits with a little internet shopping for new wardrobe changes on the course, shoes, Singlets, Shorts, Wetsuits, shoes and more shoes, in a variety of weights, materials and most importantly colours, means that the delivery of parcels to work addresses from Wiggle and Active Instinct would press for the request for David to negotiate a better rate from DHL!
Well it all did the trick, and there were no wardrobe malfunctions.. photos can be found at www.flickr.com/photos/treemad
But it was worth it, the smiles on faces, the exhaustion mixed with elation, the relief and the hunger to do it all again… it’s like child birth! (trust me guys it is!) So within 24 hours of touching down on Terra Firma Dan has dangled the challenge carrot by signing up to another half Ironman in Dubai, so November it is Guys. Who’s in. well frankly I think anyone would be forgiven for deciding to miss this one, but with this bunch of fitness masochists its anyone’s guess.
And that drive and elation, exhaustion and pride is pretty infectious. Last year after the full Ironman in Nice – I came back, got on my bike, went shopping… and introduced myself to my long lost friends, muscles!. a slowish start with a race to test the water and see if I liked it. To be truthful the water was the worst bit, as was the argument I had with my Quads, and well… running… we were never destined to be luvbuddies! But the event was fab and so I too signed up for more, (many more!) Wimborne, Hyde Park (Pru), Blenheim (Lukemia), Dorney Lakes (Shock Absorber), London (Virgin) and Dorney Lakes (Votwo). So I can back the idiot gene that kicks in after an event. the adrenalin rush. SO the year started… eventually… with training sessions and in the last 2 months I have put in – 4-5 sessions a week including running for the first time in my life (I was a rocket off the blocks sprinter but nothing over 2 minutes 41 Seconds at a time.)
Alas the biproduct one hopes for is a little toning and weight loss, neither has appeared thus far, but I am hoping a corner will be turned soon. I cycled to work today – the long way – and we have hills in Dorset I have just discovered!
Suffice it to say, anyone who gets up regularly to train, then decides to push themselves to the limits, whilst having a life, to be able to perform on a single day, whatever the prevailing injury or ailment – including age – has my RESPECT.
So Tony, Peter and David – hats off, it was a privilege to watch and an inspiration.
Dan and Andy a quick doff – After-all you are 30 years younger and should be running for your life and curtailing long drunken weekends of enjoyment!
An emotional weekend, great choice of location – topped up the tan … amazing.
Until next time…..
Now cough up some more dosh so we can reach £50k and put an end to the insanity!
Diary date – 25th July – Rowing 750 miles – just to throw a curve ball! More info to follow.