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Headcase Ironman

~ Raising funds to help find a cure for Glioblastoma Multiforme (GBM) brain tumours.

Headcase Ironman

Tag Archives: GBM

Weekly Update

13 Wednesday Mar 2013

Posted by Editor in Blog, Colin's Blog

≈ 3 Comments

Tags

Cancer, GBM, headcase, ironman, triathlon

I will start by congratulating Tony and Dan on their efforts this week in Abu Dhabi and Dubai for their triathlon trials and training from which they returned last Wednesday.

Helen’s employer, Carillion Surgi Centre, held a quiz night on Friday on behalf of Headcase and presented them with a cheque for £3000 which is really brilliant and means we have achieved 10% of our target in one fell swoop!

On Saturday I went to Chelsea v WBA. I was driven by Bootsy, Becca and Nick.  Chelsea had arranged with Bootsy that I would sit in the disabled area at the side of the pitch, not the best of views but at least I was there.  We had to sign a load of autographs as we looked for all the world like Andy Pipkin and Lou Todd.

Colin 2

I had a check-up at Addenbrooks yesterday and was told that the tumour is stable at the moment.  They identified my recent “turns” as seizures or little fits and so they have put me on medication to control them.

 

Boris We sent out a photographer to spy on Nick to make sure he was training hard.  To our amazement he was sprinting up to the line as we snapped him.

 

We also managed to get a shot of Bootsy peddling like fury to improve his time.
Little Britain

Finally, just to remind you all that there is a fund raising live music event at The Crown in Stotfold organised by the wonderful Shirley and John King.  There are lots of great raffle prizes donated by local businesses and the band is The Fantastic Blazing Eighties, so go along and have a blast!

Abu Dhabi… DONE.

03 Sunday Mar 2013

Posted by Editor in Blog, Dan

≈ 1 Comment

Tags

Cancer, Dan Russell, GBM, headcase, ironman, Nice213, triathlon

Screen Shot 2013-03-03 at 11.30.06A very enjoyable day (for one half of the team at least) and another step in the right direction.

After the usual pre race nerves and watching world Ironman champions and Olympians (one of which being the current Olympic champion) start the swim, it was my go. Having still not done as much swimming as I’d like to have, confidence wasn’t at its highest but I knew If I kept a steady pace throughout the 1.5k and didn’t blow up I’d be ok and get out into T1 ready for the bike. Aside from the goggles steaming up and the glaring sun making it almost impossible to see, overall it was quite a good swim and I came out knowing that with a bit more training and some better goggles id be in a pretty decent position come June.

Out of the swim and into T1 I took my time knowing that I needed to make sure I had everything ready as I was about to embark on a 100km cycle. Off to the the bike start I saw my first fan of this years season shouting. Doesn’t matter how many people there are when doing triathlon, when you see someone you know it always gives you a lift and this was no different. I guess that was a good thing as in my head at that point I felt I needed more than just a bit of motivation! A propeller on the back wheel would of been great!

Screen Shot 2013-03-03 at 11.37.20

With that said I must admit I really enjoyed the cycle. It was pretty flat overall and quite windy in parts but on the whole I felt great and the 3 hours seemed to go quite quickly. Every now and then you would see the helicopters and motorbikes fly past you filming the elites. Brownlee went past the other way at one point and it still makes me question why I even bother doing this. Having ended up doing an extra lap of Yas Maina f1 circuit by mistake (around 6km) he still managed to break the course record on a day where the wind on the cycle caused the long distance time to be slower by 20mins on last year! Its just unbelievable for anyone to understand how someone can do that, but having taken part in triathlons for a few years now it becomes even harder to comprehend. Super human is really the only explanation…

So off the bike in just over 3 hours I went into T2 feeling surprisingly ok with the legs in pretty good condition. Again my fan and frustrated spectator was there at the start of the run to give me a kick up the arse which was most certainly needed on what was one of the hardest 10kms I have ever put myself through. The sun was beaming down and the temperature was 30 degrees which didn’t help, but the constant stitch and nausea was really the main problem from about 1km in. There were times on the run where I really did question why I do this which is something that doesn’t normally happen and the km markers seemed to be getting further and further away I’m sure of it. Eventually the pain was over and I was through the line to be welcomed with cramp in both legs and a bit of recycled electrolytes to share around 😉

Tri Medal

Finish Time :   04:37:28

Split Times

  • Swim (1.5km) :  0:30:31
  • T1 (Gross):     0:04:08
  • Bike (100km) :  3:10:52
  • T2 (Gross):     0:03:05
  • Run (10km) :    0:48:54

So the focus now is back to a decent block of training to take prepare for the much larger challenge that lies ahead. Short term goals are breaking the 30 minute mark in the 1500m swim on the 15th March and getting the other half of the team back to full fitness.

One last note to say that it seems that the donations are beginning to pick up again which is great news!

Thank you so much to everyone for the support shown so far and lets keep going to reach that target.

 

Cheers

Colin’s Weekly Blog

02 Saturday Mar 2013

Posted by Editor in Blog, Colin's Blog

≈ 4 Comments

Tags

Cancer, Colin Headcase, GBM, triathlon

NickIt’s weekly blog time, and it still amazes me the extent of the generosity and support from you all. Friends and people I don’t know send kind comments which are so humbling and give me the strength to carry on.

Well, I had my hospital appointment with my consultant for more results on Friday 22nd. They confirmed that I have a “saddle” blood clot the size of a rugby ball, crossing both lungs. Because of this they are stopping all chemotherapy and further treatment to cut the risk of increasing the clotting. The clot has to disperse naturally which could take weeks or months. The only thing which will help is a daily injection to the stomach which Helen administers. They can’t contain the tumour with steroids either because this can also result in more clots. This is a total Catch 22 situation but they will continue to monitor and make on-going assessments.

On that Friday, in the evening, it was good to see “Young Cabbie” Lee Wallace who had driven up from Ealing to spend some time with us, and Bootsie and Tony came on Sunday to watch the Chelsea v. Man City game with us. As usual, I got excited and went for a fall across the living room, over the coffee table and landed head first in the radiator while everyone nonchalantly carried on watching the match!

Well my auction of CFC memorabilia ended this week raising a total of £1060! I have already deposited this to Headcase. I’d like to congratulate Becca for baking and selling delicious cakes raising £120 with her “cake-a-thon”.

Tony and Dan are continuing their training in Dubai this week. Well done lads!

By Thursday we had located enough lycra to start Nick’s leotard and, with enough machinists, we Little Britainshould have a fitting by the time this blog goes out. Also we caught up with Bootsie , training flat out on his equipment as he may still be needed if Tony wimps out or breaks another nail or two!!

Newsflash! Carillion, the owners of Lister Surgi Centre where Helen works, have donated a cheque for £3000, yes that’s three grand, to Headcase!

Up and coming events are:
Next Saturday, March 9th at The Crown in Stotfold , there is live music by The Fantastic Blazing Eighties hosted by Shirley and John King in support of our amazing charity.

That’s me in the wheelchair with my flag.

21 Thursday Feb 2013

Posted by Editor in Blog, Colin's Blog

≈ 23 Comments

Tags

Cancer, Chelsea, Colin Smith, GBM, ironman, triathlon, Tumor

wheelchair

Let me start by saying that it’s good to be back and feeling more normal and thanks to those who stepped in for me last week to enable my blog to go out.  I’ve a long way to go now to get rid of the clots on the lungs, daily injections in the stomach for up to five months while monitoring the tumour – the clots being the priority now and not to form any more.  I am on oxygen at home at the moment to stop breathlessness and I’m awaiting a wheelchair to be delivered.

So once again I was admitted to Addenbrooks at short notice, not really being sure what was up exactly.  Arrived…taken to Oncology short stay…blood tests…chest Xray…MRI scan and when the results came back it amounted to blood clots on the lungs. They wanted me to stay in for monitoring and so they had to find a bed for me which they did at 10 O’clock at night.

It wasn’t until the staff handover the next morning that I got the technical term for my condition.  As the doctor and night team were handing over, they were going through the other patients.

“This is Mr So and so, bowel cancer.  This is Mr Blah Blah, bone and hip cancer.  This is Mr X, cancer in the femur   and this is Mr Smith, admitted late last night with….constipation!!”

I looked up at them.  “What?”

They were giggling.  I said, “Excuse me.  I’m terminally ill here.  It’s a brain tumour, not constipation!”

Well, thank you all again for your donations and for your messages of support. I try to thank you individually but my computer is as slow as me these days!  I am going back to the hospital again on Friday for more tests, scans and to check on the fecking clots!  A new magazine/publication recently launched by a friend of ours,  Ms Katy Ryan, “In-Spire”,  ran a Headcase article this week and my story  featured under the headline “Six Months Survivor and Counting”  You can find it at  www.in-spirelsmagazine.co.uk.

My two Chelsea auctions have ended this week of my personal collections of programs and ticket stubs. The proceeds will be deposited direct to the Headcase charity once the money has gone to my PayPal account and all the fees (EBay charges, postage, PayPal fees)  have been deducted.

I would like to wish a speedy recovery to our Ironman, Tony, who underwent a more invasive operation on his shoulder than he first thought. My heartfelt message is,  “Get over it and get back training!” I understand that he is on holiday next week to recuperate.

We have encouraged young Bootsy to dust down his cycling equipment in case he is needed to step in as a replacement for Tony on the off chance he doesn’t recover and get fit in time. We’ve also negotiated with the organisers to have a separate competitor to do the running part of the Ironman which Nick has agreed to do. We are frantically trying to locate enough Lycra to custom – make a leotard for him!

Finally, I would like to welcome into the family my latest grandchild, Francesca, who arrived on the night of Wednesday 20th of February weighing in at 9lb 1oz.

 

 

 

Bootsie turns from Career to Competitor……

17 Sunday Feb 2013

Posted by Editor in Blog, Tony

≈ 2 Comments

Tags

Cancer, GBM, headcase, ironman, Tony Russell, triathlon

Little BritainIt has been reported that whilst Colin is being treated in order to return to full duty, Bootsie, his lead career on match days, has been spotted on his bike.

Following surgery on one of the IMHeadcase team, Bootsie has stepped in and has begun training for the event……

Commenting Bootsie said ” It has to be done, we are all wishing Colin well and thinking of him constantly, but the show must go on ” he continued ” if I have to do it all then so be it ………but to be honest I have a long way to go and I am getting strange looks with these stabilisers on” Great effort Bootsie.

Our own Fiorenzo Magni?

16 Saturday Feb 2013

Posted by Editor in Blog, Tony

≈ 2 Comments

Tags

Cancer, GBM, headcase, ironman, Tirathlon, Tony Russell

One half of Team IMHeadcase is out of Surgery, not just a keyhole, a more invasive procedure due to the discovery that the  damage was greater than expected. The code reads L sh ASD, E\O ACjt Cuffrepair- subscap, supraspin LHB tenddesis, for those in the know!  for those of us mere mortals it is replacing ligament into shoulder blade, two rotator cuff tear repairs, shaved collarbone where chipped and whilst in there shaved off a bit of arthritis. But what will it mean going forward?

Firstly tying shoelaces is to be challenging. Pre tied ties hanging on the door and slip on shoes, sleeping sitting up and no driving. Of course the latest fashion accessory – a fetching blue sling with accompanying stabilising pad for 6 weeks.

However the training must go on at some kind of level – so a sneaky 12k the day after and stepped up to 20k the day after although no use of the arm makes for the legs taking the strain and being a little lopsided.

FiorenzoMagni-tmbTaking some inspirational thought from Fiorenzo Magni, cyclist of the 50’s who broke his clavical in the 1956 Giro d’Italia, but with the help of a bicycle inner tube strapped around the handle bar and held in his teeth he fought through a snow storm, and went on to complete the race and finish 2nd.

So 6 weeks of sling wearing, and gentle cycling is the order of the day, assuming getting dressed can be mastered first!

Then gloves are off and the slog to build up the long lack of swimming and running to prepare to complete the course within the allotted time.

The severity of the operation makes the race seem a log way off.

None of this is a jot on the landscape compared to Colin’s situation, but his wishes are to raise the money and that means the journey continues but with him in our thoughts with every pedal strike.

This was always going to be a rocky ride!

16 Saturday Feb 2013

Posted by Editor in Blog, Colin's Blog, Editor's Posts

≈ 5 Comments

Tags

Cancer, Colin Smith, GBM, ironman, triathlon

I have been asked to write on Colin’s behalf this week as he is unable to post a blog update himself. Alas this is because he is currently in hospital, his condition has taken a sudden turn for the worse with a diagnosis of multiple bilateral pulmonary embolisms ! (blood clots on both lungs) he is having treatment for this and at the moment this condition is serious.

Colin feels that posting his developments like this will help people realise how this terrible disease can so rapidly escalate! He has made sure there has been a wonderful element of humour in this blog to encourage people to relate to the person as well as the disease. We have all read some moving and wonderful postings from Colin’s friends and family and we are delighted to have been privileged in helping providing the forum for everyone to express their support and feelings towards Colin and his family.

However we also need to impart just how catastrophic this cancer is and how fast matters go from concerning to serious. For those who take a serious view on wanting to understand what happens, from a more medical perspective you may want to read: http://www.hindawi.com/crim/medicine/2010/862028/ it is from the USA, but it is one of many case studies available for review.

Gender of people who have glioblastoma multiforme and experienced Pulmonary embolism:
Female – 29.7%
Male      -70.2%

Age of people who have glioblastoma multiforme and experienced Pulmonary embolism:
40-49 – 15.14%
50-59 – 24.29%
60+    -58.04%

Our prayers and best wishes are with you Colin.

Letter from Headcase Cancer Trust

10 Sunday Feb 2013

Posted by Editor in Blog

≈ Leave a comment

Tags

Cancer, GBM, headcase, ironman, triathlon

Headcase thank you
Dear Tony and Dan

Ironman – Nice 2013

I write on behalf of us all at Headcase to thank you both for your magnificent support by aiming to raise £30,000 for our Research Projects.

I was very moved when I read your story about your friend and know how difficult a time you are all going through. I am sure that making good things happen will go a long way to helping to ease the pain.

We are absolutely delighted with the support we have been receiving from all over the U.K and because of donations from people such as yourselves, we have not only set our first researcher in place at Portsmouth University’s Neuro-oncology Department but are on the point of taking a second researcher on board, also for a three-year term as well as providing the laboratory with some vital equipment which will assist them in their work.

Please be assured that everything which is raised by you will be spent on G.B.M Research and that your efforts, and those of all your friends and colleagues who are supporting us through you, are greatly appreciated and not taken for granted

I wish you the very best and will watch your progress with great interest.

Yours sincerely

Andy Johnson (Honorary Treasurer and Founding Trustee)

 

DFS – Donna’s Furniture Store

10 Sunday Feb 2013

Posted by Editor in Blog

≈ 2 Comments

Tags

Cancer, charity, fundraising, Furniture, GBM, headcase, ironman, triathlon

Shabby-Chic-Painted-Furniture-3-Colors-to-Stick-To-689

My whole family have known Colin and Helen for as long as I can remember. Mainly from being neighbours either from Norton Crescent or Hopewell Road where I and Colin and Helen live now.

We wanted to do something to help raise money for Headcase, those of you that know Colin or Helen, can understand why.

We need pre owned, pre loved, pre-used, old, antique or (just plain old junk ) small pieces of furniture that we can paint and sell on. Please check your sheds and lofts and email me donna.foster11@ntlworld.com if you think you might have something. I will let you know if its what we are looking for or not.

At the moment I have had a few donations to keep me going but this will be an ongoing idea until June. My husband calls me DFS… Donnas Furniture Store and I call him MFI Mike Fosters Irritation lol as he is tripping over pieces of furniture haha – maybe I shouldn’t have left that chair on the stairs!!!  #lifeinsurance

We hope to raise over £100.00 if you can help in any way please get in contact.

Ironman Insanity

10 Sunday Feb 2013

Posted by Editor in Blog, Dan, Tony

≈ 1 Comment

Tags

Dan Russell, GBM, headcase, ironman, Nice 2013, Tony Russell, triathlon

Ok folks – we all think that all this “Ironman” malarkey is just another Triathlon, an excuse for a weekend away in the south of France, a nice dip in the water, a cycle through the countryside and a jog around the city. And the weather will be pretty good in late June too, wont it?

Its not just the distances that are unimaginable to those that don’t relish a sprint for that proverbial bus. Its the number of other bodies thrashing through the water, elbows, feet, blow back, I mean no breast stroke and keeping your new bouffant dry for the evening celebrations!!  then in the cycle, yes granted one is now seated! but its no best of DFS, with integrated recliner function, what is not always obvious to the untrained observer are the inclines, from sea level to nearly 1200 ft and pretty sharply too!    Then the run… not much to say about that, we are all pretty impressed at the thought of Paula Radcliff running a marathon, but not after swimming and cycling.

So lets recap:

3.8km swim

Swim

180km cycle (Note the course profile graph!!)

Cycle

42.2km run (reminding you yes this is a full marathon)

Run

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