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Headcase Ironman

~ Raising funds to help find a cure for Glioblastoma Multiforme (GBM) brain tumours.

Headcase Ironman

Category Archives: Blog

Tony’s Topup

03 Sunday Feb 2013

Posted by Editor in Blog, Tony

≈ 1 Comment

Tags

Cancer, GBM, ironman, Tony Russell, Tumour

So two weeks in and here are the stats…….55 Donations amounting to £2,629 (£3250 with giftaid)

  • 8,497 hits on the blog from 2,978 unique visitors from 32 countries
  • 163 @IMHeadcase Tweets
  • 79 @IMHeadcase mentions
  • loads of Facebook likes

Feb 10 stats

However our best week was the 21st January with 4,498 visits in one week, our big launch of the blog, Since then we have promoted the blog and circulated tweets, but it needs your help with spreading the work and getting people to take a look, then hopefully donate.

All excellent so where to next…..

Before I go into that I just want to put on record that Colin is fast becoming in my eyes the first member of the ‘Chelsea Supporters club – hall of fame’ what a top bloke supported by an equally top family. He has in adversity found a new vocation! his story and weekly diary are truly inspiring, a blend of humour with a real touch of reality and detail. So if Colin can raise his game then it is up to the rest of us to at least try and match it…not going to be easy !!!!!

So what’s been happening this week ?

  •      Lee one of the Chelsea boys is planning a collection at Heathrow from the cabbies ! full day but great effort, will keep you updated…..
  •      Ronnie is moving the ‘three peak’ boys along, I suspect a further update soon..
  •      We now have collection jars, well stickers for jars for coins collections, let me know how many you want…
  •      A football night – led by ‘Chopper’ Harris and Jimmy Greaves…that could be interesting !
  •      An ‘Insurance in the City’ event is being planned for the 23rd Mary in Minster Exchange, Mark Lane,

My favourite message of the week was from Faye…..on her Facebook !

‘Ok everybody…….its finally the end of January so everyone will have been paid by now, diets out the window, alcohol back in the fridge…and a daunting unused gym membership…..but its pay day so do something to make you feel better…don’t scroll past this to read some irrelevant post about someone’s weekend plans or breakfast (yes guilty of those types of statuses myself)…….go to this web site and donate for an amazing cause…….Thank You’.

I will be doing this sort of propaganda every last day of the month until June so plenty of time if now is not the best month for you to donate !

Other ideas………

  •      We have now had 55 donations taking us 8% of the way…if all of those 50 people persuaded 5 additional people a month to contribute £1 we raise a further £1250..easy !!!!
  •      Challenge yourself to get one COMPANY interested in contributing to the cause…..
  •      Arrange to do something, do you have a skill that could attract people to part with their money….or arrange a collection or something similar….

Colin is fighting with the gloves off…the least we can do is support him and the cause !!!! Happy funding……

No 1 Daddy’s Girl

30 Wednesday Jan 2013

Posted by Editor in Blog

≈ 9 Comments

Tags

Cancer, Colin, GBM, headcase, ironman

Shelly & CharlieI sometimes struggle to find the right moment to tell you everything that I want to say without breaking down, so now is the perfect opportunity, as I know you’ll be reading this.

So here it is Dad (AKA Clark Griswold). I class myself as a number 1 daddy’s girl not many daughters can say that at 30 they can sit and chat to their Dad whilst he is in the bath and she is having a wee but it is something we do. Ok so we don’t make eye contact and you don’t really get choice when I just march in! You are not just my Dad though, you are my mate and I come to you with problems, gossip and to have a good old bitch (that’s what we’re best at). I also think that we are the funniest people on the planet, I know Mum tries but like we always tell her “you’re only married into the funniness” it’s in our genes.

You told me that no one can take away my memories and that I don’t need material things to remind me of you “you’ll say anything to get out of buying me something” I have the most fantastic memories of us Smiths to last me a life time. I am so grateful to you and Mum for being such an inspiration, for staying together through thick and thin. What you have given to us kids is something that I hope to be able to give my girls, stability, security and all the love they need no matter what age they are.

I have so much to thank you for, if it wasn’t for you and Mum supporting me and Michael through the loss of our baby twins on 2009, taking us in and keeping us strong and together we may well have not had the future that we do now with our two beautiful girls, who absolutely adore their Nanny and Grandee.

I sometimes wish that we could go back to being a young family again, blissfully unaware of what future we have, but this is life, and what we have been through together has taught us to be stronger and tighter than ever. As Charlie said in her post no words can describe the pain that we are feeling and what we felt when we found out in August, we just hope and pray that they can find a cure for this horrible disease so that no family has to go through what we are going through now. That is why what Tony and Dan Russell are doing is such an amazing thing for a fantastic cause. So please, please keep on donating and thank you once again to everybody that has helped so far – your generosity really does touch us.

Shelley Smith

Tony Tiger Topup

27 Sunday Jan 2013

Posted by Editor in Blog, Tony

≈ Leave a comment

downloadOk …. Things have started really well. First week and we have taught Colin how to use a computer, and to commence what must be a tough call and write his story….top bloke.

We have had 1000’s of hits on the Blog from countries all over the world as well as the first 27 people donating a total of over £1600 …but this is only the beginning ! We would need to average over £200 per day to stay on target.

Thanks to everyone who has donated so far please spread the word and if you can spare a bit more along the way please return and donate again, it is really appreciated, however, we also need ….
Corporate Sponsorship.

So we need any company that may may be able to help, if they need more info or help in putting together an approach please get in contact…we can help.

Also we have other initiatives commencing:

  • Coinstar jars with the Headcase stickers on. Send your kids to school with them, or put one by the front door and put all your change in it. when it is full go down to your local collection centre, usually a super store and just tip it all in.
  • We have a group from QE2 doing the three peaks and have decided to donate all funds to Headcase, all good stuff.
  • We want to raise awareness at varios corporate events and if you think you’d like to choose Headcase as a charity to support at an event, quiz, run, bake-off, cycle, walk, swim whatever then let us know.

So please any ideas how ever off the wall please contact us and we will help….time is ticking and it’s a great cause…..thanks Tony tonyrussell42@live.co.uk

Weekly Update

26 Saturday Jan 2013

Posted by Editor in Blog, Colin's Blog

≈ 3 Comments

Tags

Cancer, Colin Smith, GBM, headcase, ironman, triathlon

Colin & HelenApparently I am obliged to write a weekly blog, about feelings and things in general, so….here goes.

Now that the “Just Giving” site is up and running, I would like to thank all those who have donated and for the kind comments they have posted. It really does mean a great deal to me and makes such a difference to the way I look at life. I am turning into Bob Geldorf from Live Aid with his “ Give us your f***ing money!” Joking apart though, every penny does go into finding a cure which will be a truly marvellous day, too late for me and many others with the same condition but hopefully for future generations and some of the little mites we see around the hospitals.
Let me start with a few “Thank You’s” in no particular order………

  1. I’m sorry God, you’re not included in this one!
  2. To Tony Russell and his son, Dan for recommending this charity and for tirelessly working to get everything up and running while simultaneously training for the Iron Man challenge in Nice which will also be for Headcase.
  3. My wife, Helen, for her patience and care. Also for her obvious frustration about only having 1/3 of the bed instead of ½ now that the steroids have kicked in again!! I’ve gone from being “Darling” as a pet name to “Moonface”!
  4. Debbie, the lovely landlady of The Crown pub in Church St, Litlington, near Royston for all her efforts and her link between us and “The Stars”!

As far as things are going for me, I’ve had a relatively pain free treatment up to now. Radiotherapy has been completed and I am on a break from 2nd stage chemo which runs at 5 days on and 23 off. My next bloods and chemo are on 5th Feb. Tiredness is about the only symptom apart from a sense of confusion when I’m talking or listening in a crowded situation. Oh, and my concentration can be limited and I keep losing things as well as having the odd hallucination.. (one really strange one the other night was when I really thought Chelsea had gone out of the League Cup!)

I am trying to go to as many games as possible however it’s a struggle not only for me but also for my “carer” Bootsy who looks after me. I think he’s going for a day’s training next week due to two recent incidents when firstly, I tumbled out of the tube flat on my face and then when I fell back down an escalator, both times landing in a heap but laughing.
I am so grateful to Bootsy and the others on the list above. Actually I am grateful to everybody who has been so kind, very grateful, it’s really humbling.

We have a few events coming up with the support and appearance of ex Chelsea players and with the friends and family who have harangued the CFC to continue to support us.

For my part, I am in the process of selling off all the Chelsea memorabilia that I have collected over the years and we shall be making our personal donation by next weekend, if my computer stays up and running. Please be assured that I do read everything you post but I am often quite slow in replying.
PLEASE KEEP UP THE GREAT SUPPORT! And ………Donate, Donate, Donate! No Helen, not doughnut, doughnut – I’m fat enough!

Looking back on all this, my story and my feelings, I think my D Day came right out of the blue. No warning, just bang! There was no explanation and I have never lost consciousness. Helen was with me 24/7, discussing my case with the doctors and then making things clear to me with the best of her medical knowledge. My initial reaction was that just two months before I had experienced the best day ever, Chelsea and Munich and that now was the worst day that could be imagined, but it was not yet 100% certain so there was just a little bit of hope to cling to. That hope disappeared though when the consultant took us into that dreaded “Little Room” in Queens Hospital, London……….

Next week: Coming to Terms with Death Row.

A Daughter’s Plea

25 Friday Jan 2013

Posted by Editor in Blog

≈ 1 Comment

Tags

Bije, Cancer, Colin Smith, GBM, ironman, Tirathlon, Tumour

Charlie 3Colin’s story has had an overwhelming number of messages, it is difficult for people to keep up with them. However picking this one out to blog was an obvious. It tells you exactly what is needed – donations, but also the heartfelt words of Charlie, Colin and Helen’s youngest Daughter.

“I can not put into words how much you mean to me, I can not put into words what an amazing, Dad and Granddad you are and how much I love you!, I am so so so proud of you Dad. With out your funny(/sick) sense of humour, great spirit and determination I’m sure we would have all given up hope! You are doing such an amazing thing and given us all hope that there can be a cure with a little help from everyone to raise money for the research needed to find a cure! Please, please everyone donate something big or little (as every penny helps) by clicking on the ‘sponsor me tab’ at the top of the right hand page!!!!! Dad I love you and I will do everything I can to raise money for the charity and thank you so much for those who have already donated !

The Up hill just got steeper

24 Thursday Jan 2013

Posted by Editor in Blog, Tony

≈ Leave a comment

Tags

Cancer, GBM, ironman, triathlon

shoulder-rotator-cuff-tear-torn-partialWhen the trip and slip sets to scupper the No Hospital trips New Year’s resolution its understandable that spirits take a dip. But there is a plan and that was Physio, modest exercise for a couple of weeks then build up to swimming in 4-6 weeks. As long as the pain wasn’t getting worse or the ligament wasn’t “flicking”. Guess what? it’s getting worse and the ligament is “flicking”. Make or break… booked operation to put it back in place as soon as the surgeon could fit me in.

So already a setback, but Operation booked for the 14th. Surgeon understands the dilemma, and his responsibility to get this shoulder sorted. However it does mean first major Warm up is off Abu Dhabi on the 2nd March. More details to follow, for now painkillers and a lot of swearing!

Tony

Help!

23 Wednesday Jan 2013

Posted by Editor in Blog, Editor's Posts

≈ Leave a comment

Tags

Cancer, GBM, ironman, Nice 2013, triathlon

Asmara July 2008 060

Now we have a few followers and comments I am hoping people will spread the word, encourage more to follow, tweet the word, like, poke, Facebook, chat, refer and generally ensure the exposure of this missions goes viral! I have been delighted to be able to set this blog up, it certainly seems the easier option rather than doing the Ironman!!! but if anyone has comments on things they’d like to see, read or link to, please do let me know. We have already had over 1200 views in the first 3 days.

Obviously the intention is to surpass last year’s fundraising target of £30k and aim to reach £50k… but also to raise the profile for research into this tumour through the Headcase Charity Trust. If anyone has contacts, links to the Media, friends or family that can assist in raising the profile and thus the funds please get in contact. I had never heard of Headcase Cancer Trust before hearing Colin’s Story, someone I have yet to meet, but frankly, what I know so far, is an inspiration.

I have previously raised money for widows in Eritrea Air ambulance and last year Breast Cancer Campaign. But I immediately felt that the efforts the Ironman required and the difficulties this Charity faces and Colin’s situation it made perfect sense to help in any possible way.

Man Flu

23 Wednesday Jan 2013

Posted by Editor in Blog, Dan

≈ 1 Comment

Tags

Cancer, Dan Russell, GBM, ironman, triathlon

Dosed up
My planned return to the UK journey for Friday will be including a basket of Medical goodies. Trying to avoid the Antibiotics Route, but I am not  relishing a pressurised cabin with blocked sinuses.

Dan

The Gear is Here

23 Wednesday Jan 2013

Posted by Editor in Blog, Dan

≈ Leave a comment

Tags

Cancer, Dan Russell, headcase, ironman, Nice 2013, Traithlon

image[1]

First set of clothing gear has arrived!
Everyday this seems to be becoming more and more of a reality.

I am Still battling with this flu that has now moved its way on to my chest which is never great when you have asthma and training to do cardio training but never mind. Id rather have this in January than in June so trying to look on the positives!!!

2XU – White Long distance try singlet
2XU – Compression Tri Shorts
ProGel Cycling stretch shorts
Pre Ride Chamois Crème – Ugly thought but an ESSENTIAL!

image

Little hiccup

19 Saturday Jan 2013

Posted by Editor in Blog, Tony

≈ 1 Comment

Tags

Cancer, GBM, injury, ironman, rotator cuff, shoulder, triathlon

Rotator_Cuff_TearOk the new year starts and now the time has come to face reality, flights and entrance is booked, no backing out now.

And then a little water and a rotator cuff sets to cause complete chaos!!

As adults we are normally familiar with the forces of gravity and its effect on our bodies but less familiar when velocity and water come into the mix. A seamless innocent trip to watch a football match resulted in a slip and trip. But the pain and resulting damage now mean the journey is going to be harder than planned.

Consultations and physio confirm two partial tears and a displaced ligament so for now Swimming takes aback seat and an operation is on the cards.

It may be easy to spot the be-wetsuited competitor that is going round in a circle!

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